All Shaping Our Lives publications are developed by service users and are available in different formats on request.
Click here to view the newsletter as a text only word file. (This format is most suitable for people who use screen readers.)
Click here for a page where you can download previous newsletters.
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In 2003 – 2004 the training for people who wanted to become social workers changed. For the first time people who use health and social care services were to be involved. For a long time service users have been saying ‘Nothing about us without us’ and now these important changes made it a requirement that service users should be involved in the education and training of social workers.
To download the full report click here (PDF)
To download the full report click here (Word)
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The aim of this consultation event was to explore with people who have mental health issues, including alcohol and other substance users, their views, perceptions and ideas on a draft policy prepared by the Crown Prosecution Service on prosecuting criminal cases involving people with mental health issues.
Click here to download the Shaping Our Lives consultation report
Click on the links below to download the published CPS Policy Statements:
CPS Policy supporting victims and witnesses with a learning disability (click here)
CPS Policy supporting victims and witnesses with mental health issues (click here)
This report was commissoned by Cumbria County Council and Primary Care Trust to inform their joint strategic needs assessment ‘Anticipating future accommodation needs for older and older disabled people in Cumbria’
To download the full report click here (Word)
To download the report summary click here (Word)
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In autumn 2008 Shaping Our Lives supported five service user and/ or disabled people's organisations to hold networking events for service user led organisations in their own regions. The groups came together at the events and talked about their work and activities, and shared ideas with each other. This report highlights how important service users, both as individuals and in groups, see networking as being, if they are to be involved as active citizens in their communities and society.
To download the full report click here (Word)
To download the Report Summary click here (PDF)
To download the Report Summary click here (text only - Word)
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A new study for the first time reports what service users want for future social care and how they think it can be achieved. Findings are presented from a national consultation event jointly organised by Brunel University and the Commission for Social Care Inspection. Shaping Our Lives supported the involvement of service users and the event was also supported by 18 major social care organisations, bringing together key policymakers and a wide range of service users.
One year in, the government’s three year plan for the radical transformation of social care to personalisation, is overshadowed by inadequate funding and recession. How is the momentum for change to be maintained and what do service users want that change to look like?
Service users identify a radical and coherent programme for reform that goes far beyond the expansion of personal budgets.
To download a PDF version please click here
To download a Word version please click here
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In late 2007 Shaping Our Lives was commissioned by Cumbria County Council to undertake a consultation with service users at six residential care homes in the county. The six homes are the first of the 33 Council run homes to be included in the Council's modernization plan. The consultation was carried out between February and April 2008.
To download the PDF version click here
To download the Word version click here
Published: November 2007
This knowledge review looks at current literature and practice around service user involvement, the extent to which service user involvement has brought improvements to social work and social care and where the change has become established practice.
To download the full report (PDF) click here
To download the summary report (PDF) click here
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This unique book is about the experiences of people with learning difficulties, how they are treated and what needs to change. It is based on research controlled by people with learning difficulties. It tells us how they did the research, what they found out and what needs to be done. Copies are available for £6.50 plus £1.50 p&p from the Shaping Our Lives office. Just click the ‘Buy Now’ button below.
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or click here to download a free PDF copy of ‘We are not stupid’. If you can afford to buy a copy we do appreciate it as we do not have project funding to cover the costs of this publication. |
Several reports have been published from the Standards We Expect project, which Shaping Our Lives worked on with De Montfort University, Brunel University and Values Into Action.
Person Centred Support - A Guide for Service Users (click here) (word document) or get in touch with Shaping Our Lives to ask for a printed copy.
This information pack was developed for service users who took part in The Standards We Expect project. However, we think it could also be useful to other service uses by providing some information and ideas about person centred support.
Person Centred Support- What service users and practitioners say (Full Report click here or Summary Report click here)
The Standards We Expect- Choices for End of Life Care (click here)
Making a Change: A guide to running successful and accessible workshops and training (click here)
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This report outlines the key themes from a seminar organised by the Commission for Social Care Inspection, The General Social Care Council, Shaping Our Lives, Skills for Care and the Social Care Institute for Excellence. The term ‘benefit barriers to involvement’ is used to describe the ways in which the current benefit system discourages or prevents people in receipt of benefits from getting involved.
You can order a free, printed copy from the Shaping Our Lives office.
Report of regional consultations with service users to develop a strategy to support the participation of service users in social work education.
You can order a printed copy from the Shaping Our Lives office or
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This paper outlines a project commissioned by the Department of Health which focused on participation in the undergraduate and postgraduate social work degree. Focusing on how service user and care organisations can develop their involvement in the undergraduate and post graduate social work degree and drawing on successes of the first two years, the paper then goes on to identify existing barriers to successful partnership and possible ways forward.
This project was a joint venture between Shaping Our Lives, Department of Health and SCIE.
You can order a copy from SCIE (www.scie.org.uk) or
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Shaping Our Lives, in association with other service user organisations, are putting together a report which is based on what many service users have said and written about social work over the years. We hope that this will also influence the current review in a helpful way and ensure that more service user voices are heard.
You can order a copy from the Shaping Our Lives office or
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Full Report: Number of pages 137; file size 1209K. Commissioned by INVOLVE.
Click here for a copy of the full User Controlled Research report. (PDF file)
Click here for a copy of the summary User Controlled Research report. (PDF file)
Click here for a copy of the summary User Controlled Research report in large print. (20pt) (PDF file)
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Click here for a copy of the Contributing on Equal Terms report. (PDF file)
Click here to see an article in Society Guardian by Peter Beresford on the report.
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Click here for the report that was put together by Shaping Our Lives after we had talked to more than 60 service users to find out what they thought of this government Green Paper on adult social care.
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(Published March 2004 by the Social Care Institute for Excellence)
Author: Enid Levin
This guide focuses on how service users, carers
and providers of social work education and
training can work together on the degree
programmes. It covers the principles,
practicalities and range of approaches to
building and sustaining these partnerships.
The key messages of the guide apply also to
developing service users’ and carers’ involvement in all types of training for social
work and social care staff and in the design
and delivery of services.
For full report click here (PDF)
To download the full report click here (PDF)
Currently not available in Word format but we hope to have it available soon
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