DWP refuses to say if it followed death review advice on ‘threatening’ universal credit

Ministers are refusing to say if they acted on the recommendations of a secret review that linked the death of a benefit claimant with the “threatening” conditions they were forced to accept when signing up to universal credit.

The Department for Work and Pensions (DWP) has breached freedom of information laws by failing to say whether it followed the recommendation by one of its own internal process reviews to make universal credit’s so-called “claimant commitment” less threatening following the death.

DWP’s failure came as the chancellor, Philip Hammond, attempted in this week’s budget to calm concerns about the rollout of the troubled new system by announcing extra funding of £1 billion over five-and-a-half years that he said would help the migration of claimants of other benefits onto universal credit from next year.

He also announced £1.7 billion a year to increase universal credit work allowances.

But critics have said the extra money will do little to address growing concerns that flaws at the heart of the universal credit system are exposing disabled people and other claimants to strict conditions and sanctions, resulting in severe mental distress and extreme poverty.

Only last week, Disability News Service (DNS) reported how an autistic woman said she had been left without vital financial support for nearly two years because she could not cope with the face-to-face interview she had to undergo to complete her universal credit claim.

Now DWP is facing questions over why it is refusing to say if it followed the recommendations of its own internal review to make the claimant commitment less threatening, following the death of a universal credit claimant.

Only the barest details of the death are available, describing only the recommendations made by the review.

But those details show that a panel of reviewers who examined the circumstances around the death concluded that it seemed “excessive” for DWP to include eight references to benefit sanctions and how much money a claimant would lose if they breached their claimant commitment.

The claimant commitment sets out the “responsibilities” that a claimant has to accept in return for receiving universal credit, and “the consequences of not meeting them”.

An examination of guidance on the claimant commitment on DWP’s website suggests – although it does not prove – that the department has ignored the panel’s recommendation, as it has not been updated since April 2016.

The claimant commitment review was carried out at some point between April 2016 and June 2018.

Following a freedom of information request submitted by DNS, DWP had 20 working days to say whether it had followed the panel’s recommendation to “reconsider the wording of the Claimant Commitment”, along with recommendations made in 11 other internal process reviews, all of which were carried out between April 2016 and June 2018, and all but three of which examined circumstances that led to the death of a benefit claimant.

But DWP’s freedom of information department failed to respond to the request submitted by DNS on 28 September, breaching its Freedom of Information Act duties.

DWP’s press office refused to comment on the failure to respond to the request, other than to say that its freedom of information team would “be in touch”.

A DWP spokeswoman refused to say why the team had failed to respond to the request.

Disabled activists have repeatedly warned that universal credit – which combines six income-related benefits into one – is “rotten to the core” with “soaring” rates of sanctions and foodbank use in areas where it has been introduced.

In June, a report by the National Audit Office said DWP was failing to support “vulnerable” claimants and was unable to monitor how they were being treated under universal credit.

And in July, employment minister Alok Sharma was asked by MPs on the Commons work and pensions committee why the benefits of hundreds of sick and disabled universal credit claimants were apparently being sanctioned, even though they should not have had to meet any of the strict conditions imposed by the system.

In the same month, further concerns were raised by the committee about disabled people with high support needs who have to claim universal credit and face the possibility of strict conditions – such as being forced to carry out hours of job searches every week – as they wait for a work capability assessment.

1 November 2018



Concerns over industry’s repeated objections to councils’ accessible homes plans

Representatives of the home-building industry are engaged in a countrywide campaign to defeat attempts by councils to ensure more accessible homes are built in their areas, research by Disability News Service (DNS) has shown.

Home Builders Federation (HBF) has lodged “worrying” objections to plans for accessible housing drafted by at least 15 local authorities in England since March.

The objections to councils’ draft local plans concern their proposed targets for the proportion of new homes that should be built to accessible housing standards.

HBF has repeatedly objected to targets describing the proportion of new homes that should be built to the basic M4(2)* accessible housing standard and also to those for new homes built to the stricter M4(3) standard for wheelchair-accessible properties.

Both the government standards are currently optional, but the Equality and Human Rights Commission (EHRC) called last week for them to become mandatory, in its major report on equality and human rights across Britain.

DNS has found HBF objections raised since March to draft local plans drawn up by more than 15 local authorities, including Liverpool City Council, Sevenoaks District Council, Reading Borough Council, East Cambridgeshire District Council, Kettering Borough Council, Darlington Borough Council, Sunderland City Council and Middlesbrough Council.

Each of the objections is critical of the council’s attempts to impose targets for local housing developments that would see a certain proportion of new homes built to M4(2) and M4(3) standards.

HBF describes itself as “the principal representative body of the house-building industry in England and Wales”.

Its membership includes “multi-national PLCs, regional developers and small, local builders” and its members account for more than four-fifths of all new housing built for sale in England and Wales at market prices and “a large proportion of newly built affordable housing”.

In response to Liverpool’s draft plans, HBF says: “The HBF does not consider that this policy is required, it is considered that local needs can be met without the introduction of the optional housing standards.”

It calls for the policy to be “deleted in its entirety” or, if the council retained the targets, “ensure they have the appropriate evidence to support this policy”.

In the objection to the Sevenoaks plan, it says: “It cannot be sufficient to state that there is an ageing population who are more likely to require such homes.

“Our aging population is a national concern and one faced by all areas. If this were sufficient justification then the Government would have made the standard mandatory.

“Therefore we do not consider the Council to have provided the evidence required by national policy to justify all new homes being built to the optional standard M4(2).”

HBF even objected to Sunderland’s proposal to require just 10 per cent of larger new developments to be built to the M4(2) standard, which it says was “not considered to be sound as it is not justified or consistent with national policy”.

DNS was first alerted to HBF’s frequent objections to local accessible housing plans by Cllr Pam Thomas, a wheelchair-user and a prominent Labour member of Liverpool City Council.

She was not available to comment this week, but she told a fringe meeting at Labour’s annual conference in Liverpool in September: “The law doesn’t help us at the moment.

“We want to [ensure more accessible housing] through our local plan but some developers and the Home Builders Federation in particular objected, as they do everywhere.”

She told the meeting that HBF objected to such plans at every opportunity.

An EHRC spokeswoman said this week: “Inappropriate or inaccessible housing is increasingly leaving disabled people trapped and isolated within their own homes.

“This is unacceptable in a modern society. The objections from Home Builders Federation are worrying and demonstrate the concerning attitudes that we raised in our recent housing inquiry.

“Local authorities told us about their frustration at the system which pitches them against developers who challenge the viability of proposals for accessible housing.

“The situation would be greatly improved if building regulations were amended to ensure that all new houses were built to a good minimum standard of accessibility and adaptability.”

Baroness [Sal] Brinton, president of the Liberal Democrats and a wheelchair-user, who spoke about the accessible housing crisis in a House of Lords debate last week, told DNS that it was “concerning that local councils are trying to do the right thing but are being pushed back by developers”.

She said that M4(2) homes were “designed to be inclusive and flexible for a whole range of households”, and that the government should amend building regulations to ensure that they become the “mandatory minimum”  for all new homes, “especially given the very small extra building cost per housing unit and the reduction in costs of adaptations at a later stage”.

She added: “This saving is much more stark when health and social care costs such as domiciliary care, residential care [and] hospital stays are added into the picture.”

Baroness Brinton called on the government to act immediately on advice from parliamentary committees, including the Equality Act 2010 and disability committee, which she was a member of, and organisations such as the accessible housing charity Habinteg, and “amend the building regulations to ensure category M4(2) becomes the mandatory minimum”.

An HBF spokesman said in a statement: “Planning policy provides the opportunity for local authorities to set figures in local plans for houses to be built to M4 standards.

“If they choose to do so, the planning system requires local authorities to provide evidence of the need in their area.

“If they abide by this requirement their request will be supported by the local plan inspector and house builders will abide by the adopted policy.

“HBF looks to ensure that local authorities are abiding by their responsibilities under the planning system and are planning for the right amount and types of homes in their areas.”

He added: “Housebuilders will adapt new dwellings to meet the purchasers’ specific requirements.

“We believe that such an approach is a better way to provide the type and number of accessible homes required in a particular area as opposed to a blanket requirement for such modifications that may not reflect local need.”

HBF says it would only be able to take legal action against a council over its accessible housing policies – through a high court judicial review – if it believed a planning inspector had made an error in deciding on those plans. It has yet to take such action.

*Homes built to the M4(2) standard have 16 accessible or adaptable features, similar to the Lifetime Homes standard developed in the early 1990s to make homes more easily adaptable for lifetime use, while M4(3) homes are those that are supposed to be fully wheelchair-accessible

1 November 2018



Budget 2018: Chancellor’s billions ‘will not halt universal credit humanitarian crisis’

The chancellor’s decision to pump billions of pounds into universal credit will not halt the “humanitarian crisis” that will be caused by its systemic flaws, disabled activists have warned.

Philip Hammond announced in this week’s budget that he had found £1 billion – spread over five-and-a-half years – to ease the delayed “managed migration” process that will see about three million claimants of “legacy” benefits such as employment and support allowance (ESA) moved across to the new universal credit.

He also promised another £1.7 billion a year to pay for more generous work allowances for universal credit, which combines six income-related benefits into one.

Hammond began his speech on Monday by making it clear that his budget was “unashamedly” intended to help “hard-working families… people who get up early every morning… the strivers, the grafters and the carers”.

Managed migration will begin next year but will affect only about 10,000 people in 2019, before accelerating in 2020.

One of the flaws of universal credit repeatedly raised by critics is the length of time – at least five weeks, usually – that a claimant has to wait before they receive their first payment.

Among the new managed migration measures detailed in the budget documents are that claimants of income-related ESA, jobseeker’s allowance and income support will receive an extra two weeks of those payments during the transition to universal credit, but only from July 2020.

There will also be a cut, from October 2019, in the maximum rate at which universal credit advance payments can be paid back, from 40 per cent of the standard living costs allowance to 30 per cent; and, from October 2021, there will be an increase from 12 to 16 months in the length of time DWP will take to claw back these advance payments.

Budget documents also reveal that the much-delayed rollout might now not be completed until June 2024, rather than the end of 2023, once a “six month contingency” for further possible delays is taken into account.

Hammond also announced that the amount that disabled people and households with children can earn before their universal credit begins to be withdrawn – known as the work allowance – will rise by £1,000 a year from April 2019.

This will mean that those affected will keep up to £630 a year, with the measure eventually costing the government an extra £1.7 billion a year.

Bob Ellard, a member of the national steering group of Disabled People Against Cuts, which is campaigning to scrap universal credit altogether, dismissed any suggestion that the budget signified an end to austerity.

He said: “While tax cuts for the rich took priority, Hammond did at least find some money to appease Tory MPs’ complaints over universal credit.

“It will make little real difference to claimants, however, as universal credit will still be the cause of a humanitarian crisis in this country, whatever last-minute tinkering the Tories do.

“And the elephant that wasn’t allowed into the room was the extreme poverty that many disabled people are living in, even before being forced to transfer to universal credit.”

Disability Rights UK said that “while these changes may be positive all are subject to delay and overall do not remove universal credit’s delivery and design problems”.

Dr Victoria Armstrong, chief executive of Disability North, said her organisation witnessed the “devastating impact of the roll out of universal credit on a daily basis”.

She said: “Whilst in principle the idea to have a universal benefit could be seen as a step forward, we have seen it be used as a vehicle for cutting basic income for disabled people.

“Not only that, the way that it has been administrated is not fit for purpose, for example the unacceptable waits, pushing people further into poverty, the use of food banks. Disability North have so many examples of this.

“Therefore, we broadly welcome the £1 billion to manage the migration process, but much of this should not be thrown at the DWP, or even Citizens Advice, but should be going to local, user-led organisations like ours so that people can be supported to understand and access the system (including digital access) and appeal incorrect decisions.”

Professor Peter Beresford, co-chair of Shaping Our Lives, said: “Pumping big money into a model failing because it is overly-simplistic and over-reliant on technology won’t solve its problems.

“Disabled people are among those worst affected by this government’s failing policies and politics.

“It’s just hoping that continuing attacks on Labour’s leadership and talking up the end of austerity will keep the punters sweet, long enough.

“We just have to hope that UK democracy is not yet so damaged that the Tories will get away with it again at the next election.”

In a blog published the day after the budget, Professor Sir Ian Diamond, the new chair of DWP’s social security advice body, the social security advisory committee, welcomed the “positive steps” on universal credit announced in the budget, but said the managed migration process was still “enormously ambitious”.

He said his committee was concerned that the government’s plans “load an unreasonable level of risk onto the claimant” and added: “We fear that, in too many cases, they may be adversely impacted by the proposals or fall out of the social security system entirely.”

Disabled activists have repeatedly warned that universal credit is “rotten to the core” with “soaring” rates of sanctions and foodbank use in areas where it has been introduced.

In June, a report by the National Audit Office said DWP was failing to support “vulnerable” claimants and was unable to monitor how they were being treated under universal credit.

And in July, employment minister Alok Sharma was asked by MPs on the Commons work and pensions committee why the benefits of hundreds of sick and disabled universal credit claimants were apparently being sanctioned, even though they should not have had to meet any of the strict conditions imposed by the system.

In the same month, further concerns were raised by the committee about disabled people with high support needs who need to claim universal credit and face the possibility of strict conditions – such as being forced to carry out hours of job searches every week – as they wait for a work capability assessment.

*For further details on the universal credit changes in the budget, see this blog by the Child Poverty Action Group’s Josephine Tucker

1 November 2018



Budget 2018: Chancellor’s ‘end of austerity’ claim ‘rings hollow’ on social care

The chancellor’s claim that the “era of austerity is finally coming to an end” and his announcement of further short-term funding for adult social care will “ring hollow” for many disabled people following years of cuts, say user-led organisations.

In this week’s budget speech, Philip Hammond provided an extra £240 million for adult social care next year, and another £410 million that will be shared with children’s social care.

There was also another £55 million for disabled facilities grants (DFGs) for this year (2018-19), although – in an error described by a Treasury press officer as “a slip of the tongue” – Hammond wrongly announced this as £45 million in his budget speech.

The government had previously agreed to increase funding for DFGs – which pay for access improvements to disabled people’s homes – from £220 million in 2015-16 to £505 million in 2019-20.

The extra funding for social care, described as “a short-term sticking plaster to stave off catastrophic collapse in social care” by Labour’s shadow minister for social care Barbara Keeley, comes ahead of a long-delayed green paper on adult social care, due by the end of the year.

Government figures released last month show the impact of long-term funding cuts.

The figures from NHS Digital show that, in real terms – allowing for inflation – spending on adult social care by English councils has fallen by six per cent since its peak in 2009-2010, from £19.16 billion to £17.93 billion in 2017-18. This figure does not allow for the continuing growth in demand for adult social care over that period.

Dr Rupert Earl, chair of the Spinal Injuries Association, was among those disabled campaigners sceptical of the difference the new social care funding would make.

He said: “The conclusion that ‘the era of austerity is coming to an end’ will ring hollow for many thousands of spinal cord-injured and other disabled people.

“Our own evidence shows that the reality is very different; care packages are all too often being cut to unsafe levels, waiting times for hospital admissions and outpatient appointments are getting ever longer and disabled people are more likely to be living in poverty.”

He added: “The crisis in care funding is a reality for many and we wait to see how the modest funding promised will remedy many years of cuts.

“Our advice line callers tell us of widespread variation in access and eligibility to care, delays in assessment and arbitrary caps on what is funded.”

The disabled crossbench peer Baroness [Jane] Campbell said the new money for adult social care would be “largely swallowed up by the huge local authority deficit experienced up and down the country.

“What little money that might be left over will be targeted at providing the same limited care for older people leaving hospital, to clear the NHS beds crisis.

“Younger working age disabled adults will not get a look in, as usual.

“For those desperate to progress independent living in this country, this budget is a sure sign that their human right to inclusion is not on the government agenda.”

Professor Peter Beresford, co-chair of Shaping Our Lives, said it was a budget “from a government concerned with its survival rather than people’s wellbeing or encouraging a sustainable economy”.

He said: “For social care, it’s yet again a case of sticking plaster – too little, too late – on an inherently defective system.”

Dr Victoria Armstrong, chief executive of Disability North, said: “Any increase is welcomed, but £240 million for adult social care this year [announced last month at the Tory party conference] and £650 million for adult and children’s social care next year still falls short of what is necessary, and if this is just to plug holes in existing systems and services then that’s not going to work.

“Our social care system is not fit for purpose; there are huge flaws, many of which are violating the human rights of disabled people on a daily basis, leading to further health problems and, in some cases, death.

“And so an investment needs to be made in order to rethink the system, not just throw money at a system unfit for purpose.”

But she said that Disability North had seen some good health and care initiatives in the north-east, including the introduction of personal health budgets and “good use and support of direct payments in Newcastle”.

She said there needed to be “a focus on what the person at the centre of the social care wants, and the outcome or service provision shouldn’t depend upon where you live”.

Meanwhile, Spectrum Centre for Independent Living, which is based in Southampton, has produced a discussion paper aimed at shaping its own vision for social care, ahead of the publication of the government’s green paper later this year.

Spectrum said it was seeking “bold, creative and radical solutions” and wanted to “encourage everyone with an interest in the future of social care to contribute their own ideas so that we can present a new vision for social care that meets everyone’s needs in a sustainable way”.

1 November 2018



Atos threatens to call police after claimant questions PIP assessor’s mental health training

Staff working for a discredited benefit assessments contractor threatened to call the police after a claimant asked about the mental health qualifications of the nurse who was assessing his eligibility for personal independence payment (PIP).

Atos has now launched an investigation into what happened at the assessment centre in Leeds, which saw the nurse abandon Kris Weston’s assessment after just a couple of minutes.

She did not realise that Weston, a composer and trained sound engineer, had been recording the assessment.

Weston began the assessment last month by telling the nurse that he had stayed up all night because of the extreme anxiety he experiences when he has to deal with institutions.

He had spent three days putting together a 10-page description of his complex mental health problems – and what he says is the “continual failure to even listen to his problems by multiple institutions” – in the hope that the assessor would help him secure the financial and health support he needed.

He explained that he had been unfairly described in the past as “violent” by the NHS after a telephone argument, although she told him that Atos had no record of this.

She appears to have wrongly blamed the decision to refuse him a home assessment on the Department for Work and Pensions (DWP), when such decisions are taken by the assessment companies, Atos and Capita.

The assessor can then be heard leaving the room after Weston began asking about her experience and qualifications in mental health.

She told Weston that she was “not happy to sit in this room with you” because she said he had questioned her qualifications and was “being difficult for no reason”.

Weston, who did not raise his voice or threaten the assessor at any point in the conversation, told her: “You seem to have had a bit of an attitude from the start, a bit of a blasé attitude.

“You didn’t look at me, you didn’t say hello to me, you didn’t treat me like a human.”

Despite the lack of any aggression or threats from Weston, a colleague of the assessor then told him he needed to leave the building “or we’ll call the police”, before repeating: “We’ll call the police if you don’t leave.”

Weston tried to explain to Atos staff that he had “wanted to make sure that somebody understands my illness” and added: “When ill people come in you need to have compassion, not treat them with an attitude.”

A third member of staff then denied that they had threatened to call the police, before a colleague said: “He’s just wanting an argument… just shut the door.”

Weston told Disability News Service (DNS) this week: “It seems like an outrageous scandal that someone in the pits of despair, when they are asking for help, gets treated like this.

“I am quite a complex person. I just wanted to make sure the person in front of me was able to deal with it properly and had the correct qualifications.

“I was actually trying to get help. I really do want help. Mental illness help should not just be for the polite who stay quiet.”

He said he had felt severely distressed and “isolated” after the assessment, but after posting the recording online he has been flooded with supportive comments on social media.

He said: “The recording represents not just me, but the hundreds of stories I have heard in only a few days since I put this on the internet, all the people that have told me their awful stories that they didn’t record.

“I thought my recording would stand out as abuse but it’s actually just a blip in a sea of negligence that no private company will ever fix because corporations cannot have inherent morals and no amount of legislation is going to stop them from cutting corners for profit.

“The staggering scale of the problem is more than I anticipated, to say the least. This is in fact a nationwide scandal affecting our people now.

“I’m not that far off being an economic and cultural asset to my country if I could just get a clear run and be understood without being beaten down over and over again and driven to despair.

“This applies to a lot of people. We are holding ourselves back by keeping people in complete stress about their food, living space and other basic human needs.

“Given the resources they need, people who are suffering from the system itself could actually become an asset.

“After all, injecting our resources into a failing private banking system seemed to get them back on their feet.

“To think the people charged with running our country could miss this economic no-brainer is breathtaking.”

Asked for an explanation for what happened and whether Atos would apologise, a spokesman for the company said: “We are aware of the recording and an investigation is underway.”

Weston’s experience has added to years of evidence collected by DNS and other journalists, campaigners and politicians of dishonesty, unprofessional behaviour and harsh treatment delivered to benefit claimants by Atos assessors.

In one case, reported in January by DNS, an Atos nurse carrying out a PIP assessment fired questions at a disabled man’s wife while her husband was in the middle of a severe and prolonged series of epileptic seizures just a few feet away.

In February, DNS reported how more than 160 Atos assessors had had at least four complaints about their behaviour, competence and honesty made against them in three-month periods in 2016.

And in June, DNS reported how a doctor working for Atos told a gay disabled man she was assessing that his sexuality meant he was “defective” and that God needed to fix him like a “broken” car.

1 November 2018



Welsh government’s independent living decision ‘threatens support of hundreds’

The Welsh government’s decision to close its independent living grant scheme and pass the funding to local authorities could see cuts to the support packages of hundreds of disabled people, new research suggests.

Disabled campaigners say that information released by local authorities in Wales has created “extreme cause for concern” about the transition process, which is seeing funding from the interim Welsh Independent Living Grant (WILG) passed to the 22 councils.

WILG was set up by the Welsh government – with UK government funding – as a short-term measure to support former recipients of the Independent Living Fund (ILF) when ILF was closed in June 2015.

But the Welsh government is now closing WILG and by April next year the 22 councils will be solely responsible for meeting the support needs of all former ILF-recipients in Wales.

The Welsh government’s own estimates, released to Disability News Service (DNS) last night (Wednesday), suggest that about 200 former WILG-recipients will see their support packages cut by next April.

Members of the Save WILG campaign, led by former ILF-recipient Nathan Lee Davies, submitted freedom of information requests to all 22 Welsh councils earlier this year, and they say the responses proved they were right to be concerned that the transition process would lead to many former ILF-users seeing their support packages cut.

Few of the councils were willing to provide detailed information about how the process of re-assessing the needs of the former ILF-recipients in their areas would affect their support packages.

But some of the local authorities admitted that a significant proportion of those currently receiving support through the WILG have already had their support packages cut.

In Wrexham, Davies’ home local authority, the council said it had re-assessed less than a third of former ILF-users but had already cut the support of 18 of them, increasing support for just seven, and leaving one package unchanged.

Monmouthshire council had cut four of 19 packages, Conwy had reduced two of 12 – although the vast majority had still to be assessed – while Caerphilly had reduced four of 29, Merthyr Tydfil had reduced 15 per cent, and both Carmarthenshire and Rhondda councils had cut 10 per cent of support packages.

About a third of the councils – including Pembrokeshire, Gwynedd, Anglesey, Cardiff and Blaenau Gwent – failed to say how many support packages had been cut.

But some local authorities did produce more encouraging answers, with Powys council saying the reassessment process had seen it increase the support packages of 59 of 62 former ILF-users.

Although Port Talbot council had reviewed less than a third of service-users, half had had their packages increased, and the other half had seen them stay at the same level, while Bridgend decided that all but one former ILF-recipient would continue to receive the same support package.

There were also repeated warnings from the local authorities that they could not promise that support packages would not be cut in the future, with Cardiff council warning that “no guarantees as to the future are possible with any funding arrangement”.

Asked if it could guarantee that WILF recipients would have their care packages ring-fenced from all future austerity cuts forced onto local authorities, both Merthyr Tydfil and Port Talbot replied with just one word: “No.”

Huw Irranca-Davies, the Welsh government’s minister for social care, has previously pledged that no former ILF-users would lose out in the transition process.

But a Welsh government spokesman said that its most recent monitoring of the transition had found about 100 of 580 WILG-recipients were having their support “provided in a different manner than previously”*, while 130 were receiving more support.

As about 1,300 people are due to go through the transition, this suggests that about 200 former WILG-users will eventually see their packages cut.

He insisted that the government was committed to ensuring that all disabled people are “fully supported to live independently in their communities”.

And he said that Irranca-Davies had visited both Powys and Wrexham councils this week to “see at first hand the work they have been undertaking” and “will be speaking to other authorities about this over the next few weeks”.

The government spokesman said: “He will also be asking authorities to undertake a deep dive of a sample of cases where there have been significant changes in the type of support people are receiving, to establish the reasons for this and ensure they are receiving the appropriate support they require to live independently.

“This is in addition to the ongoing monitoring of the programme, and an additional independent evaluation which has been commissioned by the minister.”

The spokesman claimed that the “feedback from disabled people” on the transition programme had been “positive”.

He said: “Together with our partners in local government and the third sector, we will continue to closely monitor the process and the individual outcomes of the transition from the ILF to the person-centred and co-produced approach to independent living in Wales.”

But Miranda Evans, policy and programmes manager for Disability Wales, said her organisation was “extremely concerned that disabled people with high support requirements are having their hours of care reduced when transferring over to direct payments”.

She said: “In a number of cases people are losing their ‘socialising’ hours, which is of great concern.

“This vital support enables people to play a part in their community, volunteer with a local group and get involved in political life.

“Without this necessary support disabled people will become isolated, disengaged and unable to leave their home.”

Disability Wales has called for an “urgent review” of the Welsh government’s policy and investigations into the differences between how local authorities are applying it, which she said showed “the further development of a postcode lottery”.

She added: “We remain concerned that funding will be absorbed by social services budgets and not be directed to those who need it: disabled people with high support requirements.”

Davies said the Welsh government’s comments showed that “they simply refuse to see the evidence that is staring them in the face”.

He said: “Yet again the Welsh government seems to think of former ILF recipients as a privileged bunch.

“This is not the case at all, as we are disabled people with high care and support needs who were guaranteed a lifetime of adequate support under the old ILF system.

“They do not deserve to be made to feel like a hindrance by the Welsh government.”

He said the conclusions that can be drawn from the freedom of information responses were “very worrying indeed” and show “a shocking lack of consistency between local authorities, the development of a ‘postcode lottery’, the lack of an adequate complaints procedure for former ILF recipients and an alarming lack of security, or guarantees, for the future”.

Davies is determined to persuade the Welsh government to keep the current system, which allows former ILF-recipients some security by receiving funding from three different “pots”: WILG, local authorities and their own personal contributions.

He said: “The responses reflect why we started the campaign three years ago and give weight to our belief that the tripartite system of care needs to be maintained.

“Disabled people with high care and support needs simply cannot rely on cash-strapped local authorities to provide the levels of care that they need.

“One of my biggest concerns is that even the local authorities who have increased a majority of care packages cannot guarantee that these packages will remain at the same levels in future years.

“It is a concern that these generous increases may only be put in place for a year, while the local authorities sharpen their axes for further cuts once the campaign is over.”

He added: “The Welsh government now need to listen to the voices that have supported our campaign – assembly members, MPs, Disability Labour, Jeremy Corbyn, shadow chancellor John McDonnell, celebrities such as Ken Loach and most importantly their own members who passed a motion calling on them to #SaveWILG at the Welsh Labour conference in April 2018.”

*The Welsh government press office was unable to confirm by 1pm today that this means that their support hours have been reduced

1 November 2018



DaDaFest promises ‘edgy and disruptive’ festival highlighting years of attacks on rights

The artistic director of DaDaFest has promised that the theme for this month’s international disability arts festival will help shine a light on years of attacks on disabled people’s human rights.

Ruth Gould also spoke out this week against the failure of the national media to recognise the biennial festival, which two years ago attracted more than 360,000 visitors, and an arts sector that has grown increasingly safe and “corporate”.

She promised that DaDaFest, believed to be the world’s largest disability and Deaf arts festival, was offering a programme that was “ground-breaking, new and risky… edgy and disruptive”, with a theme – “Passing: What’s your legacy?” – that focuses on “life’s journey”.

Gould said she was “fed up” with the lack of attention given to DaDaFest in the mainstream media and suggested that this reflected wider attitudes to disabled people.

She said: “These attitudes need confronting and the aim for this year’s festival is to help shine a light on issues that affect how disabled people are viewed by others, usually in a negative way, that leads to a misunderstanding of the truth of the lived experience of disability.

“We must challenge and highlight the inequalities, especially in the form of draconian assessments such as personal independence payment and the huge amount of funding cuts, and help support disabled people’s independence and value their contributions in society.”

Her anger is fuelled by increasing despair at the impact of years of assaults on disability rights, she said, and listed a string of examples.

Friends of hers are afraid to be admitted to hospital because they fear a “do not resuscitate” order will be placed above their bed.

She remembers a disabled artist and activist who performed at the first DaDaFest in 2001 and who died five years ago as a result of social care cuts and associated lack of care.

Some disabled people have to be assessed to decide if they will be allowed to keep their babies, she said, while many young disabled people never receive the sex education they need because they are “deemed incapable of relationships and desiring of sexual intimacy”.

She said: “I know Deaf people who are too afraid to go out as they are afraid of the abuse and lack of support to help them understand what is being said.

“I have witnessed cuts to our adult services, our children’s services and our NHS while many of our user-led disability charities have lost funds and now cease to exist.”

Gould said she despairs that this country – as the NHS in England rolls out a new non-invasive pre-natal test to detect Down’s syndrome – could soon become like Iceland, where there has reportedly not been a baby with Down’s syndrome born for more than six years.

Gould said she was “sceptical, angry and very afraid for our future, indeed our very existence”.

She added: “I am sad that arts funding is pushing our sector into safe, corporate business practices that are all about ticket sales and playing it to ‘one size fits all’ – mediocrity is threatening to rule.”

But she promised that this month’s DaDaFest would show that “arts and social justice together make great art”.

The festival begins today (1 November) and lasts until 8 December across the Liverpool city region.

Artists will explore the concepts of ageing, death and the changing nature of our bodies.

The festival will also commemorate the end of the First World War as “a key moment for modern recognition of disability as a social construct”.

Among those featuring in this year’s line-up will be comedians Francesca Martinez and Laurence Clark, theatre-maker and comedian Jess Thom – with her performance of Samuel Beckett’s Not I – Stop Gap Dance Company, artists Simon McKeown, Faith Bebbington, Jonathan Griffith and Martin O’Brien, and multi-instrumentalist Sarah Fisher.

The programme includes more than 50 exhibitions, performances, talks, and workshops, featuring established and new talent.

1 November 2018


News provided by John Pring at www.disabilitynewsservice.com